Researcher
Mahsa Shabani
- Keywords (Ghent University):Privacy, bioethics, data protection law
- Disciplines (Ghent University):Information law, Bioethics
- Disciplines (KU Leuven):Evolutionary biology, General biology, Social medical sciences, Theory and methodology of philosophy, Philosophy, Ethics, Other philosophy, ethics and religious studies not elsewhere classified
- See also: Mahsa Shabani (KU Leuven)
Affiliations
- Department of Public Health and Primary Care (Department)
Member
From1 Feb 2020 → Today - Department of Criminology, Criminal Law and Social Law (Department)
Member
From16 Sep 2019 → Today - Interfaculty Centre for Biomedical Ethics and Law (Research institute)
Member
From1 Sep 2011 → 31 Dec 2019
Projects
1 - 6 of 6
- Smart Glasses for coaching and guidance in primary careFrom1 Jun 2023 → TodayFunding: IWT / VLAIO - TETRA fund
- A PeRsOnalized Prevention roadmap for the future HEalThcareFrom1 Sep 2022 → TodayFunding: HORIZON.2.1 - Health
- Smartphone crowdsourced medical data for biomedical research:
Addressing the ethical, legal and health policy concernsFrom1 Jan 2021 → 31 Dec 2023Funding: FWO research project (including WEAVE projects)
- Testing & optimising a mobile app in Belgium for the prevention and management of COVID-19 infectionsFrom22 May 2020 → 31 May 2021Funding: FWO Special Call for Covid-19 research projects
- Transparency in processing health data for public and private funded scientific researchFrom7 Feb 2020 → TodayFunding: BOF - projects
- Digital innovation for man and societyFrom1 Jan 2020 → TodayFunding: BOF - research organisations
Publications
1 - 10 of 61
- Reconciling the biomedical data commons and the GDPR : three lessons from the EUCAN ELSI collaboratory(2024)
Authors: Alexander Bernier, Fruzsina Molnár-Gábor, Bartha M. Knoppers, Pascal Borry, Priscilla M. D. G. Cesar, Thijs Devriendt, Melanie Goisauf, Madeleine Murtagh, Pilar Nicolás Jiménez, Mikel Recuero, et al.
Pages: 69 - 76 - Genomic data as a national strategic resource : implications for the genomic commons and international data sharing for biomedical research and innovation(2023)
Authors: Kyle McKibbin, Mahsa Shabani
Pages: 301 - 313 - Reward systems for cohort data sharing : an interview study with funding agencies(2023)
Authors: Thijs Devriendt, Mahsa Shabani, Pascal Borry, Elizabeth McGill
- From collected stamps to hair locks : ethical and legal implications of testing DNA found on privately owned family artifacts(2023)
Authors: Kyle Mc Kibbin, Mahsa Shabani, Maarten Larmeseau
Pages: 331 - 341 - The European health data space : too big to succeed?(2023)
Authors: Luca Marelli, Marthe Stevens, Tamar Sharon, Ine Van Hoyweghen, Martin Boeckhout, Ilaria Colussi, Alexander Degelsegger-Márquez, Seliem El-Sayed, Klaus Hoeyer, Robin van Kessel, et al.
- Building a better mobile app marketplace : a legal and governance toolkit for app mediated genomics research(2022)
Authors: Kyle Mc Kibbin, Mahsa Shabani
- Credit and recognition for contributions to data-sharing platforms among cohort holders and platform developers in Europe : interview study(2022)
Authors: Thijs Devriendt, Pascal Borry, Mahsa Shabani
- Data sharing platforms : instruments to inform and shape science policy on data sharing?(2022)
Authors: Thijs Devriendt, Mahsa Shabani, Karim Lekadir, Pascal Borry
Pages: 3007 - 3019 - Will the European Health Data Space change data sharing rules?(2022)
Authors: Mahsa Shabani
Pages: 1357 - 1359 - Lawfulness in secondary use of health data(2022)
Authors: Mahsa Shabani, Muhammed Sami YILMAZ
Pages: 128 - 134