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Project
Towards timely integration of specialist palliative home care services for older people with dementia with complex care needs and their family carers: a mixed-method theory-informed study (FWOTM1114)
A growing number of older people with dementia live at home, have
unmet complex care needs, and are often cared for by their family.
These people could benefit from receiving specialist palliative home
care services. Yet, their access to these services remains poor and
late, and this problem remains understudied. Hence, our overarching
aim is to provide the first comprehensive understanding of how
specialist palliative home care services can be integrated timely for
older people with dementia with complex care needs and their family
carers. We will investigate their current use of these services using
the administrative data of 98.8% of the Belgian population. We will
also identify micro-, meso- and macro-level facilitators and barriers
that affect the actions and interactions of specialist palliative home
care teams to timely deliver their services in dementia through a
systematic integrative review and a qualitative study with
stakeholders, informed by Extended Normalization Process Theory.
Finally, we will develop a Logic Model by triangulating these mixedmethod data via iterative stakeholder and expert consultations. By
doing this, we will gain insight into the gaps in the current use of
these services, the barriers that need to be addressed and how we
can address them to timely integrate specialist palliative home care
services in dementia. This knowledge can help us develop a new
practice that will improve the access to these services of this
somewhat neglected group.
unmet complex care needs, and are often cared for by their family.
These people could benefit from receiving specialist palliative home
care services. Yet, their access to these services remains poor and
late, and this problem remains understudied. Hence, our overarching
aim is to provide the first comprehensive understanding of how
specialist palliative home care services can be integrated timely for
older people with dementia with complex care needs and their family
carers. We will investigate their current use of these services using
the administrative data of 98.8% of the Belgian population. We will
also identify micro-, meso- and macro-level facilitators and barriers
that affect the actions and interactions of specialist palliative home
care teams to timely deliver their services in dementia through a
systematic integrative review and a qualitative study with
stakeholders, informed by Extended Normalization Process Theory.
Finally, we will develop a Logic Model by triangulating these mixedmethod data via iterative stakeholder and expert consultations. By
doing this, we will gain insight into the gaps in the current use of
these services, the barriers that need to be addressed and how we
can address them to timely integrate specialist palliative home care
services in dementia. This knowledge can help us develop a new
practice that will improve the access to these services of this
somewhat neglected group.
Date:1 Oct 2022 → Today
Keywords:Primary care, Dementia, Specialist palliative care
Disciplines:Social medical sciences not elsewhere classified, Sociology of health, Palliative care and end-of-life care, Epidemiology