Publications
A call to improve paediatric palliative care quality through research Ghent University Vrije Universiteit Brussel
Pediatric palliative home care: experiece of bereaved parents with a hospital-based liaison team. (submitted) Vrije Universiteit Brussel
liaison team that originated from a pediatric hemato-oncology unit and provides,
organises and coordinates palliative home care for terminally ill children, not limited
to cancer patients, and their families. We aimed to evaluate the support delivered by
the KITES-team, as seen by the involved parents.
Method: A retrospective ...
Instruments to Measure Outcomes in Pediatric Palliative Care: A Systematic Review KU Leuven
Duration of palliative care before death in international routine practice Vrije Universiteit Brussel Ghent University
BACKGROUND: Early provision of palliative care, at least 3-4 months before death, can improve patient quality of life and reduce burdensome treatments and financial costs. However, there is wide variation in the duration of palliative care received before death reported across the research literature. This study aims to determine the duration of time from initiation of palliative care to death for adults receiving palliative care across the ...
Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence KU Leuven
ERS statement on paediatric long-term noninvasive respiratory support University of Antwerp
Advance care planning for adolescents with cancer and their parents Vrije Universiteit Brussel Ghent University
BACKGROUND: Research has highlighted the need for evidence-based interventions to improve paediatric advance care planning (pACP) in adolescents with cancer. Although adolescents express the desire and ability to share their values, beliefs and preferences for treatment, there is a lack of structured multicomponent interventions to improve parent-adolescent communication on different ACP themes including those not limited to end-of-life care. ...