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Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers

Tijdschriftbijdrage - Tijdschriftartikel

BACKGROUND: Infrastructures are being developed to enhance and facilitate the sharing of cohort data internationally. However, empirical studies show that many barriers impede sharing data broadly. PURPOSE: Therefore, our aim is to describe the barriers and concerns for the sharing of cohort data, and the implications for data sharing platforms. METHODS: Seventeen participants involved in developing data sharing platforms or tied to cohorts that are to be submitted to platforms were recruited for semi-structured interviews to share views and experiences regarding data sharing. RESULTS: Credit and recognition, the potential misuse of data, loss of control, lack of resources, socio-cultural factors and ethical and legal barriers are elements that influence decisions on data sharing. Core values underlying these reasons are equality, reciprocity, trust, transparency, gratification and beneficence. CONCLUSIONS: Data generators might use data sharing platforms primarily for collaborative modes of working and network building. Data generators might be unwilling to contribute and share for non-collaborative work, or if no financial resources are provided for sharing data.
Tijdschrift: PLoS One
ISSN: 1932-6203
Issue: 7
Volume: 16
Jaar van publicatie:2021
BOF-keylabel:ja
IOF-keylabel:ja
BOF-publication weight:1
CSS-citation score:1
Authors from:Higher Education
Toegankelijkheid:Open