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Multiple Sclerosis Data Alliance – A global multi-stakeholder collaboration to scale-up real world data research

Journal Contribution - Letter

The Multiple Sclerosis Data Alliance (MSDA), a global multi-stakeholder collaboration, is working to accelerate research insights for innovative care and treatment for people with multiple sclerosis (MS) through better use of real-world data (RWD). Despite the increasing reliance on RWD, challenges and limitations complicate the generation, collection, and use of these data. MSDA aims to tackle sociological and technical challenges arising with scaling up RWD, specifically focused on MS data. MSDA envisions a patient-centred data ecosystem in which all stakeholders contribute and use big data to co-create the innovations needed to advance timely treatment and care of people with MS.
Journal: Multiple Sclerosis and Related Disorders
ISSN: 2211-0348
Volume: 47
Number of pages: 4
Publication year:2021
Keywords:Real world data