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Researcher
Mahsa Shabani
- Keywords (Ghent University):Privacy, bioethics, data protection law
- Disciplines (Ghent University):Information law, Bioethics
- Disciplines (KU Leuven):Evolutionary biology, General biology, Social medical sciences, Theory and methodology of philosophy, Philosophy, Ethics, Other philosophy, ethics and religious studies not elsewhere classified
- See also: Mahsa Shabani (Ghent University)
Affiliations
- Department of Public Health and Primary Care (Department)
Member
From1 Feb 2020 → Today - Department of Criminology, Criminal Law and Social Law (Department)
Member
From16 Sep 2019 → Today - Interfaculty Centre for Biomedical Ethics and Law (Research institute)
Member
From1 Sep 2011 → 31 Dec 2019
Projects
1 - 2 of 2
See also Mahsa Shabani for projects of Ghent University.
Here below the projects of KU Leuven.
- Smartphone crowdsourced medical data for biomedical research: Addressing the ethical, legal and health policy concernsFrom1 Jan 2021 → 31 Dec 2023Funding: International Cooperation and Mobility
- Federated Networks for Genomic Data Discovery, Analysis and Sharing: Ethical and Legal ChallengesFrom1 Oct 2017 → 1 Jan 2020Funding: FWO fellowships
Publications
1 - 10 of 35
See also Mahsa Shabani for publications of Ghent University.
Here below the publications of KU Leuven.
- DATA INFRASTRUCTURES FOR COHORT STUDIES: STIMULATING DATA SHARING THROUGH INCENTIVES AND SCIENCE POLICY MEASURES(2023)
- DNA Data Marketplace: An Analysis of the Ethical Concerns Regarding the Participation of the Individuals(2019)Published in: Frontiers in geneticsISSN: 1664-8021Volume: 10
- Model consent clauses for rare disease research(2019)Published in: BMC Medical EthicsISSN: 1472-6939Issue: 1Volume: 20
- Transparency and objectivity in governance of clinical trials data sharing: Current practices and approaches(2019)Published in: Clinical TrialsISSN: 1740-7745Issue: 5Volume: 16Pages: 547 - 551
- The Use of Samples Originating From Doping Control Procedures for Research Purposes: A Qualitative Study(2019)Published in: Journal of Empirical Research on Human Research EthicsISSN: 1556-2646Issue: 3Volume: 14Pages: 254 - 261
- Re‐identifiability of genomic data and the GDPR Assessing the re‐identifiability of genomic data in light of the EU General Data Protection Regulation(2019)Published in: EMBO ReportsISSN: 1469-221XIssue: 6Volume: 20
- Consent insufficient for data release(2019)Published in: ScienceISSN: 0036-8075Issue: 6439Volume: 364Pages: 445 - 446
- Variant data sharing by clinical laboratories through public databases: consent, privacy and further contact for research policies(2019)Published in: Genetics in MedicineISSN: 1098-3600Issue: 5Volume: 21Pages: 1 - 7
- Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?(2019)Published in: Annals of Internal MedicineISSN: 0003-4819Issue: 5Volume: 170Pages: 332 - +
- Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems?(2019)Published in: Journal of the American Medical Informatics AssociationISSN: 1067-5027Issue: 1Volume: 26Pages: 76 - 80